Jayden David’s father Jason reports that his walking is better — Jayden was previously non-ambulatory. He can now swim, an activity he adores, without having a seizure
“But, what about the children?!”
Why children with Dravet syndrome are using cannabis and why consistent access to their medicine is important
By Sarah Russo
Parents of some children with Dravet syndrome, a rare and severe type of epilepsy, are using CBD-rich cannabis to treat their condition. Finding this medicine is difficult and getting consistent access to quality medicine is even more so.
Dravet syndrome is a severe myoclonic epilepsy whose onset occurs in infancy. Those with Dravet may have upwards of 100 seizures per day. The most intense episodes can last for 15 minutes to up to an hour. There is no known cure. The best available treatment is to minimize seizures, which are precipitated by environmental stress.
The longer a person has an epileptic attack, the higher the likelihood that prolonged damage could occur. Dravet seizures are so intense and long that brain development is delayed. In severe cases, a seizure may cause cardiac arrest. Each day can vary drastically for those with Dravet. There are a variety of pharmaceutical anticonvulsants available, but none of them eliminate seizures, and all have side effects.
Recently, a group of families affected by Dravet have turned to CBD-rich cannabis as a treatment for their children. These families have formed a Facebook group that allows members to provide support, compare notes, and to share experiences.
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