MIDWEST CITY, Okla. —An Oklahoma family is preparing to separate. They said moving their sick daughter to Colorado is the only way to save her life unless Oklahoma laws change.
Avagrace Spencer, 9, rides her bike, likes playing with her brothers and sisters and looks like a healthy child.
“Her highs are really, really good and her lows are really, really bad,” said he mother Virginia Spencer.
However, Avagrace could have less than a year to live due to an extremely rare condition. She was diagnosed with Lennox-Gastaut Syndrome.
“Basically she has two separate brain wave patterns going on,” Spencer said.
Avagrace’s entire brain is slowing down, meaning her organs aren’t working well. Her heart even has stopped beating five times in the last year.
She has seizures every day, some lasting hours at a time. Her family is desperate to find a way to stop them.
“We’ve already tried over 21 pharmaceuticals,” Spencer said.